Food Allergy Research & Education: FARE
FARE - a go-to resource for people living with food allergies, the latest research updates and ways to get involved within the food allergy community.
Allergy Groups on Facebook
The allergy groups on Facebook are single-handidly the most important resource that we've come across. There are multiple allergy-related groups. They vary by allergy-type (Sesame Allergy Information and Awareness), focus on talking about treatment (e.g. Food Allergy Treatment Talk or SLIT Support for Food Allergies) or are location specific (e.g., NC FACES).
The Allergy Fix
By the time we read The Allergy Fix - by Dr. Sakina Bajowala, MD., we had a better idea of what we were dealing with. In hindisight, we wish the book was out when we first suspected and confirmed our daughter's allergies. Nonetheless, Dr. Bajowala's book made things a lot clearer. Bits of information that we had gathered along the way started making more sense to provide us a more educated and overarching view of the situation. If you're new to this journey, it'd certainly be worthwhile to give her book a read.
Sublingual immunotherapy (SLIT)
Given the limited number of board certified allergists that offer SLIT for food allergies, we had considered traveling out-of-state to start treatment. Luckily, while we were exploring this as an option, Dr. Nikhila Schroeder decided to start her own practice in North Carolina. We're hopeful that the multiple years of SLIT treatment will have long term benefits for our daughter. Fingers crossed!
Oral immunotherapy (OIT)
We've been going to Dr. Fitzhugh's office locally for annual bloodwork. Within the next year, we hope to compliment Anya's SLIT treaments with Dr. Schroeder with OIT via Dr. Fitzhugh's office. All with the hope of mitigating the downside risk and ideally getting to free eating one day.